A coproduced family reporting intervention to improve safety surveillance and reduce disparities.
Parents of children with medical complexity (CMC) are experts in their child's needs and can provide invaluable safety information. In this pre-post study, English- and Spanish-speaking parents of CMC were asked to report safety concerns via paper survey (pre) or mobile app (post). Overall reporting rates did not change with the mobile app, but reporting did increase among parents with lower educational attainment. Only 15% of parent-reported safety concerns were also reported by staff.